*Despite my own crankiness and fears about keeping Amelia NPO after 3:30, she was a trooper and a half.
*Although we were told to arrive an hour early, no one saw us for the first 45 minutes.
*Living up to her middle name, my amazing daughter didn’t need sedation for her MRV. I was sad that they didn’t offer it to me.
*The MRV showed that there is a huge vein behind her posterior cephalocele, but it does not run through it.
*The surgery on the 26th will take anywhere from 2 to 6 hours.
*We will be in the PICU/NICU for 3-4 days postop. I’ll staying with her since I am her food source, which means I will not sleep for those days. God bless insomnia.
*Alex is going to have a terrible time with Dave and I being gone for so long.
*I’m still, armed with all of the facts, shitting my pants over all of this.
*I’m terrified that something will go badly wrong and I will lose my daughter. Whenever I close my eyes, these scenarios pop into my head.
*I feel like I’ve now used up all of the strength I had to get through this and I don’t know how I’m going to get through. I feel like I’ve been run over by a large truck.
*Hearing “don’t worry” has gotten on my nerves and now hurts my feelings to hear. It’s irrational, but it makes me feel like I’m overreacting. I only wish I was overreacting. No, I don’t mean you.
*I still can’t believe what a month it’s been.