Cinnamon Girl

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Human anatomy I’ve always found to be a strikingly tender science. Certainly, I always loved the dryness of the carbon chains and the satisfaction of growing new strains of bacterium, but seeing the human body and lovingly learning all of the nooks and crannies, all of the ways that we are all the same underneath, that is beautiful.

I always heard civilians shudder when I explained that I would be assisting with a dissection.

“Gross,” they would say. “I could NEVER do something like that.”

When pressed, I never got anything more specific from them, which meant that they’d never seen one, because the body, well, the human body is not gross. It is resplendent. It is powerful. It is amazing. It is beautiful.

All of the organ systems functioning in synchronicity so that we are able to walk upright, speak, form words, paint beautiful pictures, draw pictures with our written words, love, that is not gross. And that is what human anatomy is.

Inside, we are even more beautiful than out.

Rarely, however, do the names of the parts of the body reflect their beauty.

Often, they’re named after the anatomist who found them because scientists are about as self-serving and obnoxious as bloggers. The Islets of Langerhans, for example may bring to mind a nice set of islands found off the coast of Ireland, but no, they’re actually endocrine-producing cells of the pancreas.

Even the very word pancreas sounds more like something you’d find dead on the side of the road than something that creates the body’s most important enzymes. But to say it aloud sounds dirty, something you spit out of your mouth, a splat, an inelegant word for a very elegant organ.

The day we learned of the heart, I came across the words chordae tendineae, and I stopped for a moment. Latin words make me happy, which is probably, in part, why I am so attracted to virology. Continuing on, I read what this curious, elegant term meant.

The chordae tendineae are tendinous cords of dense tissue that connect the two atrioventricular valves to their papillary muscles in the hearts ventricles.

The chordae tendineae are the heart strings.

That is probably the most graceful and magnificent term I have ever heard and the best representation of why I find human anatomy so intoxicatingly lovely.  We human beings actually have heart strings.

Whenever I am sad, I think of those tiny strings, which I have seen with my own eyes, felt with my fingers, those strings of fibrous tissue, so very much stronger than they look, and I am comforted by the heart strings that bind us all.

On my refrigerator hangs a report from Early Intervention with my daughter’s name on it. It is a discharge sheet that states that she is at or above level for everything. It was true then. It is not true any longer. I cannot bear to take it down, because to take it down would be to admit defeat.

I will not be defeated. My daughter will not be defeated.

When I called my case worker, she sounded so sad to hear from me, her voice mirroring my own. It didn’t help that the only sheet of paper I could find with the phone number on it was her discharge from the program with a jaunty, “We enjoyed working with your family!” on it.

The therapist will come several days after my 30th birthday to evaluate my daughter and to tell me what I already know: Amelia is not normal. Amelia needs help. I am a trained diagnostician and I am aware of both of these facts. I am also aware that I am doing the right things. But knowing this doesn’t make this any easier for me.

There is something between her brilliantly big brain and delicate rosebud mouth that isn’t connecting properly. It fills me with a well of sorrow I didn’t even know I had, because I want so badly to hear her words. All of her words. Stories of Saturn and the planetarium and pleas for cookies and candy and the injustice of it all when I deny her.

I want to know my daughter.

Instead, I kiss her head and rub her scar and apologize to her for what is certain to be a hard road ahead. My heart strings clench painfully and I cry bitter tears, wishing I could make it easy for her, knowing I can’t.

We’re gearing up for a battle over here and we’ll win.

Eventually. Some way, somehow, we’ll win.

When I tell people that Alex, who is now three, wouldn’t let me out of his sight for the first year of his life, they normally give me That Look. The one that sort of implies that I’m a helicopter parent, you know, like I hover around him, so that Ickle Alex doesn’t DARE get a boo-boo wifout his Momma RIGHT THERE to cuddle him up and protect him from the big, bad world!!!

Considering I informed Twitter I was shopping for a bag of glass and new gun to give him for his birthday, I don’t think anything could be farther from the truth. I love my kid to chunky pieces, I could have done without the suffocation of the first year. Bumps, bruises, those are part of childhood. And shit, one look at my legs would tell you those are part of my adulthood too.

After his sister was born, I was fortunate enough to secure him a spot in an in-home daycare for three hours a day. It was probably the smartest thing I’ve done–even smarter than the time I tried to whittle a model of the Parthenon out of a marshmallow–because for three hours a day, the kid is with other kids the same age. He’s had to LEARN to adapt to a life outside of his mother.

Of course, he HATED. LOATHED it, even. The lady is fantastic, the other kids are all under five and she does stuff with them that’s full of the awesome like going to the fire station to see the trucks! Story-time at the library! They went to Costco to make cupcakes! I mean, life is good for Alex.

Now, my slow-to-warm-up son loves it. On the weekends he asks to go to her house.

Alex is just a particular brand of finicky that reminds me of both my father and brother, both of whom are so set in their ways that they can hardly stand it when things do not go according to plan. It appears that not only does my son resemble my brother in appearance, he’s taken after the Sherrick side of the family in temperament as well as sense of humor.

(Pithy aside: He told his first joke last week, which he found UPROARIOUSLY funny, “P is for POOPY! BWAHAHAHAHAHAHAHAHA!” And Alex, he has the best laugh of any of my children, so we all laughed along, first out of shock that he’d told a joke and then because he was in hysterics.

My child, all right.)

St. Charles is a Soccer Town, you see, and we’re all practically expelled from the womb clutching a wee soccer ball. So it was merely a matter of time before Alex was handed his, and as he’s spent the better part of two years kicking soccer balls, I figured this would be like heaven for him.

What I DIDN’T realize is that Alex would have a problem with being on his own to do it.

But we don’t give up in my family, at least not on my fucking watch, so I’ll be dipped in pigshit before I let my kid leave soccer early because he’s unhappy about it being DIFFERENT. He’s slow-to-warm-up, which means that in a couple of weeks months I’ll have to pry him off the field, but for that moment, I was stuck, sweating my balls off, and holding my son, wondering what to do.

The other parents were all sitting in their lawn chairs watching their kids play soccer, looking at me, bemused.

Dave was wrestling with Amelia, who was trying like hell to wander into a Ebola-ridden puddle and shrugged at me.

I looked at Alex, still happily nestled in my arms.

Then I did the only thing I could think to do.

I put him down, grabbed his hand and marched my sandal-clad feet down to the soccer field and said, “Let’s play some soccer, kiddo.”

There I was, the World’s Most overgrown three-year old, playing a mean game of Red Light, Green Light on the field with the kids like a damn asshole, while the other parents looked on, laughing. I was Billy Madison, except in soccer.

You know what? It fucking worked. I mean, I looked like a bigger moron than normal, jogging around the field like an overgrown toddler, but still, the kid stayed, he’s happy about going back next week, and soccer is going to be just fine.

Thank Baby Jesus, Ben can play his violin (he has perfect pitch!) without me up there playing alongside him. Because I’d hate to upstage some little kid when I busted out my version of “Enter Sandman” on the heavy metal cello.

The first time I saw a brain, a real brain, suspended in some greenish liquid at the front of my gross anatomy lab, I stood there, staring at it for a good long while. I was long past being disgusted by the organs of the human body, and seeing the folds of the creamy white tissue struck me only with a sense of wonder. This was it, right there: all that you were, all that you thought, all that made you you was right there in that innocuous looking organ.

Really, it could have been a football for as glamorous as it looked.

But to know how it worked, studying the nuances of neurology, that is poetry. All of the mysteries that we still do not know about how the synapses fire to make one person want to maim and dismember and one person want to paint the Sistine Chapel, that is beauty. The smooth folds folding seamlessly into each other made up separate and distinct parts of the brain and instinctively I rattled them off in my head as I examined the brain in the jar: the cerebral cortex, responsible for how we are feeling, our emotions. Those that make someone laugh or weep, smile or scream, right there.

The parietal lobe, which is how we use all of our senses at once to make decisions, the back of the head responsible for sight, the very sense I was using to examine the brain I was so enthralled by. Without it, I wouldn’t be able to drive a car, see the deep brown of my son’s eyes, the bright red of the fall leaves outside of the classroom. One by one, I observed all of these structures on that brain, carefully preserved in formalin in a jar labeled ABBY NORMAL.

How could something that looked like a Nerf ball be so mystifying and so shockingly resplendent in it’s simplicity at the same time? Something that made each of us who we are should have looked unique, special, like a jewel and somehow, the more brains I saw, the more I realized that they all looked pretty much the same.

Maybe it’s what we do with those hunks of white matter that contains the beauty, because with the exception of the cerebellum (which is surprisingly beautiful), it’s a highly understated organ, especially when compared to something flashy like the kidneys.

When my daughter was born with part of her brain hanging jauntily out of the back of her head, the doctors pretty much shrugged their shoulders when we asked what that meant about her future. While she showed no signs of neurological damage, she could be profoundly normal or profoundly retarded, it simply wasn’t something that could be determined by a blood test or an MRI.

Up until she was a year old, Amelia was followed by Early Intervention, who came every couple of months, tested her, declared her normal and left. When she turned a year, I figured it was probably time to let them close the case on her for now and promise to make a call back if something changed. I know the drill with special needs kids well enough, and her medical diagnosis is an immediate qualifier for assistance.

It’s taken me until now to realize that there is actually something wrong with her beautiful brain.

Amelia has no words.

She has no words.

No glorious words, the very thing that I make my (pathetic) living from, she has none. I’ve always derived so much happiness in putting together combination of words to titillate, horrify, or move people, and she has not one word.

She’s had words before, they’ve slipped out of her mouth for a couple of days until it appears that she forgets them and goes back to shrieking and grunting to get her point across. In many ways, this terrifies me more than seeing my mute autistic son did, because it seems as though she has words, then loses them again.

It’s time to call the specialists back in and help my daughter find her words.

For good, this time.

I have a lot of delicious combinations to teach her.

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