Thank you to everyone who voted for me yesterday. I feel like a douchebag asking – trust me – but this would be so awesome for Band Back Together.
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My children follow me around everywhere I go. I think they’re trying to ascertain what it is I’m going to do next, or at least, that’s what I tell myself when all three of them are crammed into my tiny bathroom, clamoring like a basket of wriggling puppies to sit on my lap as I pee. Or maybe they’re just trying to annoy me. Because really, who wants to yell, “ALEX GET YER ELBY-BONE OUTTA YER SISTER’S FACE” while peeing?
Not me.
My daughter is especially keen on following me around, yelling at me to do her bidding, because she’s two and that’s what two-year old’s do.
A couple of weeks ago, I’d wandered upstairs to look for a hot dog or get dressed or see if Rod Stewart was in my bedroom yet and, like a sassy puppy, my daughter followed me upstairs. Perhaps she, too, was wondering if Rod, The Bod, was in my bedroom.
I began to do whatever it was I was doing while Amelia spotted – in the corner – a bag. Not just any bag, mind you, a HELLO KITTY BAG. It had various office supplies in it, as I’m SLOWLY moving my office out of the dining room and upstairs (for better privacy to watch my cat videos) and I’d grabbed some things and hastily shoved them in what had been a birthday bag for me.
Mili, seeing the bag, immediately went nuts. Anything Hello Kitty is, by default, now hers, so before I could stop her, she dumped the contents of the bag out onto the floor, proclaiming, “DIS IS MILI’S HELLO KITTY BAG.”
Fair enough, kiddo. Fair enough.
While I had my back turned, the kid began to rifle through my jewelry box – a mixture of costume and fine jewelery – and delicately, she sifted through it. I remember that being one of my favorite things as a child – my mother’s jewelry box, not stealing my own crap – so I let her go through it, figuring she’d claim some of the more garish pieces as her own.
Nope.
Oh no.
No, my daughter carefully picked out the most expensive bits of jewelry and slowly placed each piece in the Hello Kitty bag. “Mimi’s necklace.” “Mimi’s ring.” “Mimi’s bracelet.”
When she’d thoroughly magpied my collection, she looked at me, smiled impishly, pulled the Hello Kitty bag up onto her shoulder like a purse, and walked happily out of my room and down the stairs. With my diamond collection.
She’s so her mother’s daughter.
It seems a lifetime ago that my daughter was born, pissed-the-fuck-off at the world with an ominous lump on the back of her head. That day changed us both.
Once shattered and broken on that hospital floor, I’ve slowly pieced myself back together, removing the bad bits and replacing them with good. Stitched up and mostly whole now, I’m not the person who waddled into that room and popped out a very sick daughter. That’s okay.
I begged her doctors, all of them, for something, anything, to hold onto while I schlepped my ill daughter from neurosurgeon to neurosurgeon and I heard the one thing patients abhor most: “we don’t know what this means for her,” followed by the kick-in-the-teeth, “time will tell.”
So we’ve been watchfully waiting from the sidelines, celebrating the victories while fretting the small things: Does that foot-drag mean she’s brain-damaged? How brain-damaged? Is that a seizure or is she just fucking with me?
I don’t know when you exhale. I don’t know how to accept, “it really IS okay.” Because those words nag at the back of my brain, my own untouched brain, just below the surface: “time will tell.”
Sometimes, I get angry, because it’s such a bullshit thing to do, wait for time to do anything. It’s always been there, “time telling” underneath all the milestones and victories, as I wonder what next.
Today, we finally got our answer.
Time, that fucking bastard, got off his ass and came to our Early Intervention meeting and opened his whore mouth and said, “Amelia is at or above level for everything. We see no reason to continue services.”
And for the first time in a long time, I exhaled as my daughter, the Princess of the Bells, led me into the future.
I saw it in his eyes – a brief glimpse of deep sorrow – before he began dictating to his nurse the clamps and implants he’d need to fix the encephalocele atop my daughter’s head. It was the same deep sorrow I saw in the eyes of every person in the waiting room at the neurosurgeon’s office realized that Amelia Harks was, in fact, not me, but a tiny baby in a carseat, no bigger than my arm.
In that brief moment, the neurosurgeon became human, not some arrogant doctor, about to saw into my daughter’s tiny head.
Now that tiny baby, no bigger than my arm, is a toddler with an attitude so reminiscent of my own that it’s hard for me to remember that they are one and the same.
As she grows, the scar does too. What once looked relatively small now encompasses much of head. Her curls, always in a halo, cover it, so I don’t receive the same sorrowful looks I once did. For that, I am grateful. For if I did, if I had to explain those turbulent first years of her life, I don’t know if I could stop the sobs.
People, well-meaning people, tell me the scar is “barely noticeable” that they can “hardly see it,” and I always thank them on her behalf. Inwardly, however, I wonder if they know how that hurts.
It would not matter to me if the scar somehow became invisible – although she might appreciate it some day – because it’s always there for me. The scar haunts me.
Most days, I am able to work through it, reminding myself that she, my warrior daughter, is here and that she is perfect – scars and all.
There are other days, though, that the limitless well of deep sorrow I once saw reflected in the neurosurgeon’s eyes, threatens to swallow me whole. The tears, hot and fast, course down my face and I am powerless.
I scoop that toddler, once a baby no bigger than my arm, up into my arms and I weep. Confused, she touches my tears with her tiny finger and asks, “Mama sad?”
“Yes, Baby,” I choke out. “Mama’s sad.”
And the three of them – flesh of my flesh, blood of my blood – climb atop me to squeeze the Sads out. It’s only then, with the pressure of three squirmy bodies on my chest, all elbows and knees now, that I finally feel whole again.
And I wonder, as they scamper down, screaming and chasing each other about the house, my tears drying to a hard crust on my face, the well of sorrow closing for the moment, how I got to be so lucky.
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