Abby Normal

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It’s a nice enough looking building, all official and comforting, with people buzzing in and out in their neatly pressed scrubs, looking like they know precisely what they’re doing and where they’re going. In the hallway there, there’s a heart statue, or maybe it’s a statue of kids in a ring, perhaps playing a game of “Ring Around The Rosy.”

The desk is always manned by a sweet-faced volunteer to help you find whatever you’ve lost or find your way, except when, of course, you cannot find it at all. There are flowers there, too, beautiful flowers, always fresh flowers. Usually lilies are mixed in, fragrant lilies, reeking of death and funerals, but the flowers are so beautiful that you can almost forgive the scent that makes you want to vomit.

Over there is the place you cried until you dry-heaved as you took your infant daughter to her third MRI in her first week of life. And just past that is the chapel where you prayed for her life. The stained-glass windows during that frigid February day shone a cold bright light as your daughter slumbered through an anesthesia coma, and you tried to forget all that you knew about neurosurgery.

You prayed with all of your soul.

Above the chapel is the waiting room where you sat after you’d dropped your daughter off into the arms of her neurosurgeon, hoping that the last kiss you gave her warm, delicious head, wouldn’t be the last kiss you ever gave her. You sat in that waiting room with the three people who cared enough about you to show up and hold your hand and you choked back tears as the operating room nurse brought you back a bag of your daughter’s first hair in a bio-hazard bag.

You held that bag and wondered if that would be all you had left of her.

Below that waiting room is the gift shop where you dragged Nathan, someone who you will always treasure for being a friend when you needed one most, to buy your daughter something hopeful. A necklace. Carefully, you pick out a necklace that you will give your daughter and someday tell her, “Amelia, Princess of the Bells, Mommy bought you this when you were having your brain surgery.”

It’s a very beautiful necklace. A crystal encrusted heart on a simple silver chain in a velvet bag. It is perfect.

You hope she knows that this necklace is very, very important.

Two floors and a yawning corridor away, is the happy floor, filled with women and new babies, where your life was forever changed with seven words, “Becky, there’s something wrong with your baby.” A new world was created then, a secret place only you could go, this land of tears.

Your soul broke.

Up above that room, down another winding corridor, you screamed as they wrenched your nursing baby from you. Your breasts wept, too, as you cowered in that bed, terrified, in your secret place, your own land of tears.

In the dark basement, worlds away from the happy new parents above, you joined the ranks of the hollow-eyed ghosts in the NICU as you signed in and out to see your daughter. There, at least, you didn’t scare anyone with your eyes swollen nearly shut from crying and cheeks raw and bleeding from hospital grade tissues.

Above her bed there would be her bed post-surgery in the PICU and seeing her in a gown that bore the same logo as the hospital you’d worked at in nursing school made it almost easy to pretend this was all some vicious nightmare. That maybe you’d wake up to a normal, healthy baby.

Then your daughter would cry, her voice raw and hoarse from intubation and you knew this was your new world order.

When your other children came to see their sister, you’d rearrange your horrible face into a mask of what you hoped would pass as cheerfulness, ply them with candy, and hope that they wouldn’t look too closely at your shaking hands or tear-stained face. When they screamed, “I want MOMMY!” as they left for the day, you felt torn between the two worlds, one of which you’d just as soon leave behind, too.

All corridors eventually feed into the cafeteria, where you remember laughing for the first time in months. It was a jangled, strangled sort of sound, but there it was: a laugh, from your mouth, and it was real.

Down by the statue of the heart or perhaps children dancing in a circle is where you waited with your daughter as you took her home with you for the last time. Surrounded by all of the pink things you could find, balloons deflating slightly in the cold February air, you were exhausted, but ebullient: your warrior daughter had made it.

A mother had never been prouder. You held her car seat close to you as you whispered to her sleeping cheek, “You made it, my girl. You’re a fighter like your Momma, all right.” This time, for the first time in her life, when the tears wet her cheek, they were the good kind.

But late at night, when the rest of the house sleeps, these are the corridors that your mind roams, over and over. Your memory, always photographic, can recall everything with the sort of clarity that makes you relive those days constantly.

You are forever delivering that sick baby.

Constantly having her wrenched from your arms, always back in those terrible moments roaming the halls, seeing the same desk clerk, smelling those awful lilies, dry heaving into the diaper bag.

The sadness is omnipresent and yet nowhere. It is the new world order.

Save for roaming the corridors all night every night, you haven’t been back to those halls since your daughter had those awful thick black stitches removed from the back of her head.

You must return. New problems, a new specialist, means one thing: you must face your demons and return.

A new desk clerk and a new flower arrangement await you in the official looking building in which you found absolutely no comfort and now you must face up to walking these halls once again. It’s likely that you’ll cry. It’s likely that you’ll dry heave. It’s likely that no one will understand your reaction to this big official building. It’s just a place, after all.

But this is so much more than a place. It’s where the old you shriveled up and died and the new you was dragged screaming into the world.

So you and your ghosts walk the corridors all night every night, reliving the worst parts of your life, wishing they could be laid to rest, knowing that they never will.

Ever.

When I was a wee bonneted lass of about three, I stumbled upon a worn copy of Grey’s Atlas of the Human Body hidden in plain sight on the overstuffed bookcases at my parents house. I have no doubt that I was looking for a leftover piece of chocolate with which to taunt my brother (“Loooook at what IIIIII found, Uncle Aunt Becky, and yooooouuuu can’t haaavvvve it!”), but accidentally I found something that would change my life.

The book fell from it’s shelf, flipped open and the afternoon sun sank in the sky as I poured over the ancient pages of the human body, flayed and open, the diagrams carefully explaining words I couldn’t quite read. It didn’t matter what they said. The pictures were there: the muscles, the bones, the heart, the brain.

It was beautiful.

I fell in love at three years old. It’s a love that still makes my soul dance, my face break out into a gigantically goofy grin, and my brain flood with serotonin and norepinephrine.

Happiness. Such a simple emotion. So hard to explain.

When My Band of Merry Pranksters (and, presumably Your Aunt Becky) were asked by The Science Museum’s new worldwide project, “Who Am I?” to answer ‘what makes you smile?’ I could hardly say no.

In no particular order, here are some things that make me smile:

1) Unintentionally hilarious packaging by way of poor translation.

This gem was sent TO ME by my friend Wild Cakes and it sits proudly in my china cabinet. Because why the hell would I actually put CHINA in there? What, am I FANCY PANTS now?

(answer: you can take the trash out of the girl, but you can’t…wait, I’m confused)

2) My awesomely bedazzled phone. It’s really, really pathetic, actually, but it goes to show that when you can find someone else who CAN do something for you, you always, always should. Otherwise, you end up looking like a thumbless two year old probably had arts-n-crafts time with your phone.

c) Twitter. Although I often mocked it for being the most narcissistic and obnoxious, I now find to be full of The Awesome.

4) Mushroom Printing, our new group blog which is going to be full of the win, which is now ready for you to submit your most delicious, entertaining stories. I’m sure I’ll do an official launch on Monday when The Internet is not sleeping, but may as well start that puppy up.

f-niner) Smaller pants. They may not be my missing (WHORE) pants, but at the very least, I ordered some new pants in a smaller size.

00.00008) The continuing adventures of Mr. Sprinkles, my fake cat. Look at what that wily cat was up to when I wasn’t looking!

So THAT is what I was upset about. Mr. Sprinkles was busting up my army of bunnies!

And there Mr. Sprinkles, my fake cat, is AGAIN!

Oh, Mr. Sprinkles, what a silly guy you are.

6.8) This poem, that had me smiling through my tears, written by my friend, Star Crossed Writer. It is singularly the most beautiful thing I have ever read.

Amelia

An army stands ten thousand strong and tall,
But you shall rise above the bloody fray
And rain down vengeance ‘pon your enemies
And all those who would stand against your will.

When darkness threatens fainter hearts than yours
And calls ring out for champions to arise,
The cries will cease and everyone will see
Amelia, the Princess of the Bells.

I don’t even know what to say. Thank you doesn’t begin to suffice.

————————-

All right, Pranksters, this is what makes Your Aunt Becky smile. What makes YOU smile? Pull up a tall glass of vodka, gather round, and let’s freaking SMILE our balls off today.

Even in the NICU, she made her temper known. Her furious bleats echoed from the previously calmer walls, disturbing the other tinier occupants and their parents, and I had the good grace to feel sheepish as my daughter wailed fiercely, her gigantically fat legs and arms pounding against the sides of the isolette.

“Let me the fuck outta here!” she hollered without saying a word.

I echoed the sentiment, with my own words, of course.

My daughter, she is a fighter.

At birth, my Amelia Grace, the fighter, born with her brain hanging from her head, she disturbed the entire labor floor with her angry screams. Indeed, one of the only clear memories I have of her birth is her shrieks, so loud, so furious over the grievous sin of having been forced to be weighed.

(I, of course, feel precisely the same way every Friday when I am weighed in, but, you know, I am much more in control of my tantrums, so I can shriek QUIETLY before having to see the number on the scale)

This trait, this fighter trait, it has never left my daughter, my warrior girl, and it is with intense pride that I see her furiously beat her hands against the floor, shrieking in anger over some injustice, because it is so familiar to me. She is her mother’s daughter and she should know how to fight.

Yes! I say to her, YES, my brave, sweet girl, you FIGHT against it. You get good and god-damned mad and you take that anger and you channel it into something good and you use it for all it’s worth. That is the tiger in you, my child. And you let that tiger out and you let it ROAR and God HELP anyone who gets in your way. That fight will remind you you’re alive.

My little Amelia is a warrior.

If anyone should be born with the spirit of a warrior, passed so handily down from her mother’s DNA, I think it should be a daughter, someone born with the odds stacked so heavily against her.

Still, she doesn’t speak to me and tell me the secrets of her heart, although when I look into her deep brown eyes that mirror so closely my own, I can see them there, just below the surface. The Little Prince was right, what is essential is invisible to the eye. And when my heartstrings pull painfully in my chest, imagining the times when it will be so hard for her, I comfort myself in knowing that the warrior heart that beats within my own chest beats within hers as well.

The secret place, the land of tears, well, that will be hers alone, as it is with all all of us.

As I look at her, awestruck, often bemused by her anger, flared up by the terrible injustice of having been told, “no, no we’re not having candy for dinner,” I never forget how lucky I am to have her by my side.

Her speech therapy will begin soon. She’s operating at quite a delay, backsliding from even where she was several months ago. So now we put on our platinum battle armor, polish our diamond coated swords and get ready, because it’s time for the fight to begin.

My Miracle Mimi, my Warrior Principessa; it’s you and me against the world, kid.

So watch out, world.

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