The pictures, they speak for themselves:
AW! Lookit! Alex is FEEDING THE BABY! What an awesome big brother!
Oh, and there he goes, trying to pick out her eyeball.
Kids. I tell you.
To answer your burning questions, I present to you an abbreviated post! Hooray for small bits!
So, why the hell didn’t the doctor tell you about the encephalocele?
Honestly, I don’t know. I’m not sure if the whole litigation-happy climate made him wary of telling us anything before he knew for sure or not. I’m feeling much better about it today after being nearly bowled over by the news yesterday. Dave, predictably, handled it much better.
We went into surgery thinking that this was fluid-filled, which in retrospect, makes no sense so the news that there were actual glial cells inside that pocket was completely shocking to me. And it made me feel oogly inside.
Kinda creepy when you think about it.
Well, what does this mean for her development?
No clue. She appears to have all of her mental facilities intact, but she’s only 5 weeks old. The age when they sleep, poo and eat exclusively. So measuring milestones is an impossibility at this moment. She does eat, poo, sleep and wiggle which is a good sign. And when she looks at you, the lights appear to be on and someone appears to be home.
We have been flagged by the county (her diagnosis, not my shabby parenting) and will be followed by a public health nurse. That in addition to my own nursing experience ought to be able to ascertain any issues as they arise (or don’t. Let’s hope) and get her into proper treatment as needed. We’ve had much experience with Early Intervention, so I’m not scared of that.
We’ll handle it either way.
How are Alex and Ben adjusting to their sister?
Shockingly well, truth be told. Alex is a consummate Momma’s Boy and I was most afraid of how he’d take to having to share my attentions, but so far so good. Providence smiled upon us and we were able to enroll him in some in-home care 3 hours a day after my neighbor recommended her sitter. Who is awesome.
This seems to help.
A couple of months before Amelia was born, we’d bought another doll for Ben, who is nurturing it and loving it just the way he did with his first doll (bought when I was pregnant with Alex). Yes, my son plays with dolls and no, I don’t think that’s stupid. He may be a father some day and I want him to know that men can nurture as well. He’s loving having another sibling.
Anything else I failed to answer? My brain is mushy and stupid right now (okay. My brain is always mushy and stupid. I admit it.) so ask away.