I realized yesterday, as I was responding to comments, (which is what makes me look like I get a zillion comments, FYI, every response I give adds a comment) that I probably didn’t explain properly to a good chunk of my readers who came into the story pretty late in the game.
I showed you a picture of the back of my daughter Amelia’s head after a post about my lame, clumsy ass and made a joke about a baby bar fight over my integrity. This would probably lead you to believe that her scar was the result of some sort of accident, as the post implies, because I don’t assume that most of you have read back into the depths of my pathetic archives.
Mimi was born with a previously undiagnosed birth defect called a neural tube defect.
What this means is that sometime during the first month of pregnancy, the spinal cord (called during this stage of life the neural tube) didn’t fuse together properly . It can happen anywhere up and down the spinal cord, causing a condition like spina bifidia, where the delicate spinal nerves poke out.
Or, an encephalocele, where the skull is malformed, and the brain develops outside of the skull.
Like this MRI slide of my daughter’s brain, taken 2 days after she was born.
(what, ME long winded?)
On February 26th, 2009, 2 days before our daughter celebrated her 1 month birthday, we checked into the hospital to have part of her brain removed and her skull repaired. The surgery was a complete success and while the scar takes up most of the back of her head, it’s part of who she is, just like the plate in her skull.
We’ll never know why it happened to us because that’s not given to us to know, but I do know this: somehow what I was given was a platform and a voice and I intend to use it as best as I can. Because I can’t believe this all was in vain. I just can’t.
So, this spring, I’m going to Walk For Mimi in the March of Dimes March For Babies, bug the ever-loving SHIT out of my family to donate (don’t worry, you guys are safe from me here), and beg YOU to help me with this:
This award comes with a cash prize that I want to donate to the March of Dimes in honor of my daughter because I want to have my pithy, silly blog mean something to someone and maybe, just maybe do some good.
I’ve kind of accepted that I’m getting my ass beaten badly for the other two (thanks to Dooce and Cake Wrecks), but I’ve made it into the top 10 for this one, but the email I’ve gotten says that the winner last year got triple the votes that I have and it ends December 4th.
So this is me, begging for your help. Ask your people to ask your people to help my people. Sign up isn’t janky or annoying. Unlike me, who is both. So, PLEASE? Halp me?